East Anglia Children's Hospice
East Anglia Children's Hospice received a grant from Wallace & Gromit's Children's Charity to fund short break care, emotional & physiological support, symptom management, and end of life and bereavement support.
Bobby has Microcephalus, a condition where the brain doesn't grow at the expected rate meaning he has severe developmental delay. Bobby also has water on the brain, takes medication to control seizures and is waiting for gastronomy surgery so he can be fed into his tummy rather than through a tube in his nose. His mother has been through numerous appointments and tests which highlighted the conditions affecting his brain. She still doesn't have a full diagnosis for Bobby and may never have one.
EACH has been a great support for them as a family. Bobby's mum has joined the Treehouse hospice choir and goes to Mum's nights there – "the support is invaluable" she said. Bobbie's brother Callum is seven. He has been going to the Treehouse sibling days and really enjoys them. It means he gets to meet other children who have brothers and sisters in the same situation as him. EACH's facilities and services have been amazing for Bobby. He can smile, make sounds and move his legs about and the sensory room and music therapy helps him to communicate. He loves the sensory room lights, sounds and tactile objects. His mother is now hoping to get some of this equipment for his room at home. EACH has given her the help she needed to cope and Bobby all the care and support he needs.